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SRNA @[email protected]

9K subscribers - no pronouns :c

The Siegel Rare Neuroimmune Association (SRNA) is a not-for-


03:48
The Power of Community: Francisco
01:15:35
1211. Community Spotlight | Kim Harrison
29:31
1210. Community Spotlight | Paula Jones
35:22
2024 ADEM Together | Community Q&A
18:58
1209. What is ULTOMIRIS?
58:30
2024 MOGAD Together | Community Q&A
49:26
2024 NMOSD Together | Community Q&A
01:00:23
1208. MOGcast | Understanding Cortical Encephalitis
01:04:50
1207. MOGcast | The Latest in Treatments from an Adult and Pediatric Perspective
33:21
1206. Voices of SRNA Volunteers | Part 2
17:48
2024 Stronger Together | Raising Funds for Rare
17:56
2024 Stronger Together | Quality of Life Family Camp Information Session
15:47
2024 Stronger Together | Creative Connections: 30-Word Stories
41:57
2024 Stronger Together | Founders' Perspectives: A Conversation with SRNA Leaders
52:55
2024 Stronger Together | Journey Together: Reflecting and Shaping the Future
37:01
1205. Voices of SRNA Volunteers | Part 1
43:48
1204. Community Spotlight | Ilona Williams
22:01
102. Dr. Paula Barreras
42:59
1203. Community Spotlight | Rick Telander
29:16
501. Transitioning from Pediatric to Adult Care with NMOSD
02:13
SRNA | The Power of Community
22:34
1202. Increased Intracranial Pressure in Pediatric MOG Antibody Disease
32:00
2023 RNDS en Español | Tratamiento y manejo de los trastornos neuroinmunológicos poco frecuentes
27:33
1201. A Conversation about Grief and Loss with Lisa McDaniel
18:43
2023 RNDS en Español | Una conversación con nuestros aliados de la industria sobre apoyo y recursos
17:43
2023 RNDS en Español | Programas educativos y de apoyo de SRNA
24:57
2023 RNDS en Español | Entendiendo los ensayos clínicos en NMOSD y MOGAD
27:48
2023 RNDS en Español | Entendiendo los trastornos neuroinmunológicos poco frecuentes en niños
31:20
2023 RNDS en Español | ¿Qué es MOGAD y EMAD?
17:34
2023 RNDS en Español | ¿Qué son los trastornos en el espectro de neuromielitis óptica (NMOSD)?
26:53
2023 RNDS en Español | ¿Qué son la mielitis transversa (MT) y la mielitis flácida aguda (MFA)?
22:22
2023 RNDS en Español | El Sistema nervioso y el Sistema inmune 101
15:58
1115. A Conversation about Grief and Loss with Chris Lopardi
26:29
1114. Neurosarcoidosis and Rare Neuroimmune Disorders
44:39
2023 RNDS | Open Q&A Session
18:08
2023 RNDS | Rehabilitation and recovery
40:36
2023 RNDS | A conversation on disability and rare neuroimmune disorders
30:33
2023 RNDS | Cognition, depression, and rare neuroimmune disorders
22:48
2023 RNDS | Care for the caregivers
34:31
1113. Acute Treatments and Rare Neuroimmune Disorders
25:38
1112. Social Determinants of Health in Rare Neuroimmune Disorders
27:03
2023 RNDS | Transplantation of human glial restricted progenitor cells into patients with TM
28:07
2023 RNDS | AQP4/MOG tolerization research
32:09
2023 RNDS | Clinical trials in MOGAD, NMOSD, and more
25:56
2023 RNDS | Neuropathic pain research
33:47
2023 RNDS | Urological management in rare neuroimmune disorders
12:00
2023 RNDS | Q&A on Spinal Cord Injury
35:03
2023 RNDS | Symptom management panel
41:26
2023 RNDS | Deliberations on acute and long-term treatment guidance
32:58
2023 RNDS | Is it a relapse or recurrence?
46:56
2023 RNDS | Unlocking controversies around causation
49:28
2023 RNDS | Understanding a diagnosis of ADEM, AFM, MOGAD, NMOSD, ON, and TM
11:18
2023 RNDS | Welcome
24:17
405. Neuro-Ophthalmology and NMOSD
36:15
404. All Things Relapses
23:33
1111. Dr. Anderson's Fellowship Research
18:18
1110. Can Do MS: Take Charge and Coaching Series
15:35
403. I-CAN, A Study of Inebilizumab in Children with AQP4+ NMOSD
28:50
101. Drs. Kelsey Poisson and Camille Wilson
45:30
2023 AFM Together | Community Roundtable